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The National Kidney Foundation is joining other members of the Diabetes Advocacy Alliance to urge Congress to hold a hearing on the impact of diabetes. As you know, diabetes is the leading cause of kidney failure in the U.S.

We need you to contact your Representative who serves on the House of Representatives Energy and Commerce Committee (whose jurisdiction includes health issues) to indicate your support for this hearing.   Click here to read more about NKF Advocacy Alerts.

 

 
The National Kidney Foundation (NKF) needs your help to improve the health of kidney patients around the country! The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 538/HR 1130), introduced by Senators Mike Crapo (ID) and Ben Cardin (MD) and Representatives Tom Marino (R-PA) and John Lewis (D-GA), promotes kidney disease research and education and protects access to care for dialysis patients.

Email your Members of Congress now and ask them to cosponsor this important legislation!
 

Email your Members of Congress now and tell them you support increased funding for kidney disease research and programs. Each year, federal funding for kidney disease must be appropriated by Congress.  Important work is being done at the Centers for Disease Control and Prevention (CDC), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), and the Health Services and Resource Administration (HRSA) to advance kidney disease research and improve access to kidney transplantation.  However, this work can’t continue or grow without funding.  
Centers for Disease Control and Prevention (CDC) Chronic Kidney Disease Program
To address the social and economic impact of kidney disease, the National Kidney Foundation worked with Congress to launch the Chronic Kidney Disease Program at CDC.  Since then, Congress has provided annual funding to sustain this critical program.  Cost-effective early testing and treatment can slow the progression of kidney disease, delay complications, and prevent or postpone kidney failure.  Urge Congress to provide $2.2 million for the CKD program for Fiscal Year (FY) 2016, an increase of $100,000.

National Institutes of Health (NIH), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Medicare spends $87 billion annually to care for patients with kidney disease, including nearly $29 billion for individuals with end stage renal disease (ESRD), yet NIH funding for kidney disease research is only about $600 million annually.  Additional funding is needed so that more researchers can investigate ways to stop kidney disease and improve treatments for those who have it.  Urge Congress to support increased funding for kidney disease by providing $2.066 billion for NIDDK in FY 2016.

HRSA Division of Organ Transplantation
The HRSA Division of Transplantation (DoT) is responsible for national implementation of policies and oversight governing the distribution of organs to those awaiting an organ transplant. In addition, DoT also helps support programs aimed at increasing the number of donor organs.  For example, the National Donor Assistance Program has helped more than 4,800 individuals obtain a transplant by assisting living donors with out-of-pocket expenses such as travel and subsistence that are not reimbursed by insurance, a health benefit program, or any other state or federal program.  The National Donor Assistance Program enables more individuals to consider being a living donor without having to worry about unreimbursed expenses related to donation. Urge Congress to provide $26.55 million for organ donation and transplantation programs for the HRSA DoT,$3,000,000 above the President’s request. 
Thank you,
Kevin Longino
Interim Chief Executive Officer
National Kidney Foundation
 

The Chronic Kidney Disease Improvement in Research
and Treatment Act


The National Kidney Foundation (NKF) needs your help to improve the health of kidney patients around the country! The Chronic Kidney Disease Improvement in Research and Treatment Act (S. 538/HR 1130), introduced by Senators Mike Crapo (ID) and Ben Cardin (MD) and Representatives Tom Marino (R-PA) and John Lewis (D-GA), promotes kidney disease research and education and protects access to care for dialysis patients. Email your Members of Congressnow and ask them to cosponsor this important legislation!

This Act will:

Give Kidney Failure Patients Access to Medicare Advantage Plans 
Medicare Advantage (MA) plans have greater ability to coordinate care for patients across their different health care providers. Currently, individuals with kidney failure cannot enroll in MA plans, but eliminating this restriction would allow ESRD beneficiaries the same freedom of choice and access to care coordination services as other Medicare enrollees.

Expand Research 
This legislation would enhance current research efforts by assessing the adequacy of federal funding, identifying gaps in research and studying the progression of kidney disease and treatment of kidney failure in minorities.

Expand Opportunities for Kidney Disease Education 
The legislation would permit more health care professionals including dialysis facility staff to deliver education to patients with CKD stages 4 and 5.

If passed, this bill will provide more options and improve the lives of kidney patients, but it can't pass without your support!  Email Congress now.

 

Thank you,
Troy Zimmerman
Vice President Government Relations
National Kidney Foundation 



 
PLEASE CONTACT YOUR LOCAL REPRESENTATIVE & SENATORS to support new legislation to help protect living kidney donors!
 

Advocacy Alert Banner

 

On Thursday, February 25th, 2016, the Living Donor Protection Act (H.R. 4616/S. 2584) was introduced by Representative Jerrold Nadler (D-NY) and Representative Michael Burgess, MD (R-TX) in the House of Representatives, and Senator Mark Kirk (R-IL) and Senator Kirsten Gillibrand (D-NY) in the Senate.  This bill will protect living organ donors and remove barriers to donation by prohibiting insurance companies from denying or limiting life, disability and long term care insurance to living donors, and from charging higher premiums. The bill also clarifies that living organ donors may use time granted through the Family and Medical Leave Act (FMLA) to recover from donation. Email your Representative and Senators to support this important legislation. 

Kidneys can be donated by a living individual in good health.  The wait list for a kidney transplant is long and many individuals will die before ever receiving a kidney transplant.  There are over 100,000 people waiting to receive a kidney transplant.  In 2014, 17,108 kidney transplants were performed, one-third of which were made possible by living donors.  Living donors make a substantial contribution to increasing the number of transplants performed each year.  We must act to ensure living donors are protected and that barriers such as fear of job loss and unfair practices by insurance companies are removed. 

Please personalize your emails to your elected officials to share your (or your family’s) story as someone waiting on the transplant list, as an organ donor, or as a transplant patient.  Thank you for contacting your Representative and Senators on behalf of kidney disease patients and those living kidney donors who deserve these protections.  

Thank you,

Kevin Longino
CEO, National Kidney Foundation

 


 
Support Federal Funding for Kidney Disease Research and Programs.  
Show your support by emailing your members of Congress today!
 


The Dennis Bligen Kidney Foundation is a non-profit organization founded in honor of Dennis Bligen, who was diagnosed with chronic kidney disease in 2002.

 
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